14 months of hell, im glad to say things are starting to ease up. or should I say, improvements are more obvious now.
the most noticeable difference is the recovery of my “bloody wounds”. it’s not completely healed yet, but it’s better than it was a month ago. still flaking, might ooze if I scratch it, but much better than before. it’s healing! probably another month for it to clear completely?
the patch on my calves that developed a month ago is still here, but the size is a little smaller now. I have to bandage them before I sleep every night to keep the ooze off my bed. troublesome, yes, but it’s better than dirtying my bed. just have to work around it when life gives you shit.
hands and feet still having something going on. boundaries are still spreading. moving towards to palms and soles? finger that was oozing a lot last month still oozes but ooze a little lesser than before now. lots of skin fall.
whole body still red. arms and legs will be dry some days and flake a whole lot. scalp still has no sebum. face still red and dry, but much better than before.
no photo updates yet! haha there is no need to post photos right now. the only reason I posted my photos previously was in hope of showing people what it’s like and to help them diagnose themselves. I was hoping that the photos I take will be photos of the healed me. soon! that day is coming soon!
btw I have quite a lot of mysterious black spots popping up. looks like mole. I think I scratched too much and agitated the melanocytes.
and let me rant a little bit here. I wished someone told me exactly how difficult this process would be. I didn’t sign up for this when I decided to quit steroids. when I was active in the forum, no one really told me what to expect either. I was quite alone sometimes, feeling very mortified by the symptoms I faced.
all I read from dr R’s paper is that my skin will be red and burning. didn’t read anything about wounds that don’t heal, losing sleep and whatsnot. there are lots of things that weren’t documented in the paper.
I never thought this journey can be this difficult.
but I’m glad the worst is over for me. I don’t know about others, the paper described flares that last for a few months and then you get a quiet period of time. Kelly reported that she has had plenty of quiet time in her withdrawal, but that’s not what I experienced.
I don’t know but I think I might be different from them. maybe because I’m Asian.
still living in the American time zone.. sleeps in the day and up at night. im not complaining, as long as I get some sleep (and some dreams if im lucky 😀 ).
wishes everyone a speedy recovery and positivity. god bless all of you.