Perhaps you thought that “my story” was way too disorganized and too informative, I decided to just list the important things down, in a list. 😛
When did I first use steroids?
when I was 2 years old (only used it several times and very sparingly), but I didn’t touch it for a long time until I was 14.
When did I stop using steroids?
11 april 2011.
How long did I use steroids for?
it’s a whopping 8 years (guestimation). could be 10 years, plus minus. for the first 3-4 years, steroids were used occasionally. towards the later years, steroids were used almost daily (because the rashes wont go away).
Where did I use steroids on?
initially I only apply them to the spots of rashes on my arm and hand. when the number of spots increased, I just slathered the steroids as if it’s my moisturizer all over my skin. that’s right (FML). I Was careful with my face though, I only applied on the spot above and below my lips. occasionally on my forehead.
What steroids and how much did i use?
1 tube of hydrocortisone, countless TUBS (100g each) of betamethasone valerate cream in 0.025%, 0.05%, and 0.1% over the past 8 years, minimal fluocinonide, one tube of elomet (mometasone furoate).
What symptoms did I get before I stop steroids?
worsening eczema that stopped responding to steroids, growing rapidly and spreading like wild fire. I tried many remedies and changed my diet but nothing helped. my nummular eczema made me look like I had a thousand mozzie bite all over my skin.
How long was my first flare?
it lasted about 4 months. my first flare consisted of my constantly shedding skin, getting edema, turning very red and feeling cold all the time. skin will seep a clear fluid if I scratch it (and I did). when my skin touch each other they will seep fluid too. I did enjoy a few weeks of fair and smooth skin before the next flare hit me.
How was the second flare?
the second flare seem to have brought about more shit than I could have ever known. I thought the first flare was bad, the second was even nastier. oozing has came to haunt me. I had an oozing face, shoulder, elbow, finger, knee, calf, and feet. that’s almost everywhere except my tummy and back. the ooze is different from what seeped through my skin in flare 1. and I called those the “bloody wound” because they take bloody long to heal (7-8 months for my case). skin is red and thick.
Are there improvements after so long?
yes there are! (thank god!) after those bloody wounds healed up, I thought I made quite a big improvement. skin on tummy and back are smoother than a baby’s ass. just waiting for the rest of my skin to get there too.
What did I use on my skin during TSW?
NO CLEANSER, water only. as for moisturizing, it was limited to vaseline petroleum jelly (face and body). from month 20 onwards i started using the simple moisturizing cream on my face. however, there were times when everything irritated my skin so i actually braved through my days without anything for some time. that felt like hell.
Did I go on any diets during TSW?
no i did not. i tried to keep to a clean diet that consists of unprocessed food, but i couldn’t stop myself from snacking on bread, biscuits and cakes. i quit all fast food and sugary drinks though! never a fan of them anyway.. but i just can’t stop eating those stuff made from flour. AND I LOVE BREAD. SO. MUCH. so i guess you can safely assume i wasn’t on an entirely healthy diet since i have way too much carbohydrates. you know what they say about a high carb diet? high carb = high sugar = inflammation. who knows, maybe if you go on a completely clean diet, you’ll heal much faster than me 😉 but good luck on that because i’ve tried a candida diet at the beginning of my TSW and it has no apparent effect for me.
OK that’s all for now. Any suggestions or questions are welcomed, I’ll add them here later on 🙂
i believe people working for google must be really happy people,
because they get to see what people google for.
other than some ridiculous search terms (sexy legs wordpress, wtf???), there are a lot of questions that people have asked regarding TSA/TSW.
i shall sieve through the search terms and see if there are any questions that i can answer.
how long do topical steroid withdrawal last?
any time from 6 months – 24 months (just a rough estimate. it may take longer than 24 months). the duration depends a lot on the extent of skin damage, which is dependent upon
- strength of steroid used
- duration of steroid usage
- location of steroid use.
badly damaged skin will require more time to recover.
how to come off topical steroids?
1. do it like a man: cold turkey.
2. do it like a lady: tapering slowly. but this will still land you in the same state if you were to do it cold turkey anyway.
how to withdraw from topical steroids?
1. convince yourself that topical steroids are doing more harm than good
2. throw them all out
3. never apply topical steroids again during the course of recovery
4. brace yourself for the horrible withdrawal symptoms and wait for everything to be over. otherwise, you can keep visiting my blog to give yourself assurance, or seek emotional support from other skin friends through the itsan forum.
how to ease steroid cream withdrawal symptoms?
may i refer you to this entry.
how long is too long to use steroid on face?
that will depend on the strength of steroids. the key is to use topical steroids within a duration that do not allow for tachyphylaxis to occur. personally, i feel that once the steroid has lost its clinical efficacy (meaning you now require more doses to achieve the initial effects), it has been used for too long, because now you are setting yourself up for slippery slope of using more and more steroids. drugs are not without its side effects. a chemical with no therapeutic effects and a deadly side effect are known as poison. drugs are merely poison at a right dose that gives you more benefits than side effects, there’s a very fine line separating the two in the case of steroids, please be very careful.
how many people suffer from steroid withdrawal?
more so that you can imagine. those people who are trying very hard to keep their worsening eczema under control with the help of topical steroids which has lost their efficacy are also suffering steroid withdrawals, the only difference between us and them? they do not know that they’re having steroid withdrawals.
how to survive topical steroid withdrawal?
- lots of patience and assurance that you’ll heal
- support from family and friends
- manage the TSW symptoms as outlined here
- don’t stop believing
- a hell lot of perseverance and dermination
how did you know you were healing with red skin syndrome?
when the skin stopped looking red! lesser burning sensations, itch, dryness.
how much skin sheds during topical steroid withdrawal?
i am very interested to know the exact number as well. my estimate is about 15 – 20g of skin each day (since my entire body was red and shedding). multiply that by 365 = 5 – 7kg a year. just an estimate!
how to thicken steroid damaged skin?
- increase keratinocyte growth
- increase fibroblast growth and activity
how long does steroid rebound last
i think there is a slight distinction between steroid withdrawal and steroid rebound. steroid rebound pertains to the initial period of time when the skin worsens multifolds right after steroid cessation. my rough estimate for steroid rebound is about 2-6 months. after that, your skin will be taking time to recover from the damage it received from steroid usage, which will take any time from 6-24 months since the body’s natural healing takes that much time.
how do i know if i’m suffering from topical steroid withdrawals
just a small checklist.
- EITHER you have been applying topical steroids but they are not working for you anymore OR you have stopped using topical steroids for good
- rashes are spreading uncontrollably like wild fire
- you have tried every remedy that claims to alleviate eczema to no avail
- your skin starts to turn red all over
- general swelling/edema
how long will it take to withdraw from topical steroids?
in my opinion, just a split second. you just have to decide that you never want to use topical steroids ever again and there you have it, you have successfully withdrawn from steroids.
the entire withdrawal process will take much longer though, about 6-24 months (roughly).